Sunday, June 20, 2010

Father's Day

Today I am thankful for fathers.  JD has spent the past 48 hours with Grace and Clay, taking Clay to his appointment, scouring yard sales early Saturday morning, going to the playground and the farmer's market, and of course refereeing battles and all the rest that comes with a weekend spent with two young children. And I was lying on a beautiful beach in Nantucket all the while, relaxing and rejuvenating.

So thank you JD, and thank you Peter,  the fathers-in-charge while Caroline and I enjoyed two of the most beautiful days of summer.

Clay is doing well and clinic visits have been uneventful. He finished out the school year, and is looking forward to some morning camp time with his friend Patrick. Today we catch our breath before camps start and summer gets into full swing.

Happy Father's Day.

Friday, June 4, 2010

June 4

It has been a busy week here with 3 days of appointments for Clay and 1 for Pearl. The MRI went smoothly, and by now Clay is used to the routine -- no eating that day, being put to sleep by blowing the large green balloon that smells like bubble gum, waking up and getting to eat a snack which he packs ahead of time.  The anaesthesiologist says Clay is the best patient he has ever seen.  Clay talks for days ahead of time about the bubble gum balloon. This all reminds me of Dr. Larch in John Irving's Cider House Rules, who looked forward to taking a hit of ether to help him get through each day.    It makes the sedation easy for us, but we are potentially creating an addict.

The MRI showed that the tumor is no longer showing the growth we were seeing during March and April.  While too early to tell definitively, they feel there may be some evidence that parts of the tumor appear to be dying off (necrosis).  Of course we were hoping for shrinkage, but the doctors say that would not happen this early into the protocol.  So for now the plan is to hold the course with weekly doses of vinblastine. The positive news for us all is how good Clay is feeling and his blood counts remain strong. 

On the puppy front, Pearl is now up to 16 pounds and is chewing everything like crazy (glad we did all that custom woodwork in the renovation!).  Grace is her best buddy and is enjoying having a wagging tail to come home to after school.