Wednesday, March 14, 2012

March 14

Thank you to everyone who voted for Rex Burkhead -- he won!

We are hoping this will generate some attention for funding more research for pediatric low-grade gliomas.

Save the date: on May 12 we are planning to have our own version of a charity 10K to raise money for PLGA -- but one that does not require running shoes! Instead, we are teaming up with 3 bands for a night of music at the State Theater in Falls Church. The lead band is drumfish and you can listen to their music at We are thrilled to be doing this event and hope many of you will join us. More details to come.

Clay has been feeling ok but the chemo is taking a toll on his stomach. He has enjoyed some recent tennis lessons and a field trip to the Air & Space museum, as well as a kids show of Aladdin ending with ice cream. We have given up sweets for Lent so he enjoyed this dispensation even more. I took him for a new baseline on his vision, and the doctor was pleased with his depth perception and color. His right eye is worse than his left, but it is far better than it was in December. The doctors cannot agree on whether the deterioration was caused by the tumor, or the drug we tried in December. But regardless, we feel it gives us one less option for treatment in the future, on the chance that it was a rare side effect of the new drug.

I hope everyone is enjoying this crazy warm weather (82 yesterday here) as much as we are. Time to dig out the summer clothes and see what fits.