We are also consulting with several neurosurgeons to determine if and when we should do surgery to remove the bubble of fluid in Clay's spine that is now causing him balance and coordination problems. Like all the decisions were are forced to make, this is a difficult one due to the risks involved in spinal cord surgery.
JD is going to Toronto this week to participate in the International Symposium of Pediatric Oncology. The lead doctor on the Pittsburgh clinical trial will be there, as will most of the leaders in this field.
Clay finished out his Kindergarten year of school with a musical and a fun filled last week. Each child was awarded a certificate that highlighted what others in the class felt were their most obvious skills: funny, pretty dresses, strong, good at puzzles. Clay's teacher broke into tears when she handed Clay his certificate and read his strength: COURAGE. So much to ask for.