Friday, April 13, 2012


The MRI reported that all is stable, maybe even slight shrinkage. We are very happy with this news and can now expect Clay will stay on the current protocol in some fashion for the next few months. Some children are staying on this protocol for up to 2 years. We count our blessings that this medication, Avastin, is available to us. Two years ago it was not out of clinical trials. We learned this week that the clinical trial we were hoping to enroll Clay in at Johns Hopkins has been canceled because too many children were progressing (meaning their tumors grew) while taking the drug. So we are thankful that Clay did not qualify for this trial in hindsight, but crushed that another treatment option is off the table.

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